But he's also not doing so great when it comes to his seizures.
The hardest part is seeing how much the seizures affect him. He's usually exhausted afterwards and sleeps for a few hours, but on the days he doesn't fall asleep there's not much we we can do to calm his frantic crying and the rest of the day is pretty much shot because he's not the same kid afterward. It hurts so much to watch how hard it is on him and know that I've already done everything that I can do and it's just not enough.
Every parents wants the world for their child and I have a lot of heartache thinking of the ways Ollie's life might be limited, at least for now. I never leave him alone. He is my constant companion every moment of the day. We very rarely go on dates when our parents or other grown-up friends are available to babysit because it's a little too much for the average teenager to handle, and I hate to think how he will react when he wakes up from a seizure and I'm not there to comfort him (it's only happened twice and it did not go well and I felt serious mom guilt over it). It's definitely wearing us out, but I try to keep in mind that this is not permanent. In the meantime, I find myself worried that he won't be able to go to preschool, and he won't be able to play on sports teams like Creed because he has a seizure every time he gets hurt. For now I guess I just need to stop worrying about things out of my control and take things a day at a time.
He still loves his soft blanket and can't sleep without it. We keep a big one in his crib and two small versions for him to carry around (thanks mom!)