Last month, I had to leave Hobby Lobby in a rush because Larry's car broke down on the freeway and blanket was accidently left behind. When we realized, the store was already closed so none of us got sleep that night, but they were happily reunited the next day and Ollie took the longest nap he's ever taken.
I didn't realize how much his seizures would affect all of our lives at this age: his friend is signed up for a preschool playgroup and we decided that it wouldn't be safe to send him, at play dates at the park I follow him like a shadow and probably seem totally overprotective while I'm wishing I could sit and talk with the other moms and I leave the park exhausted, most Sundays I take him home after sacrament meeting to nap because nursery is during his naptime, and when he's tired he's so much more likely to have a seizure (he has had a seizure almost every time we've decided to try to stay), we can't hire teenage babysitters so we rarely go on dates, I can't accomplish much during the day because he'll wander off and I'll have to abandon whatever I'm doing to chase him so even trying to do the dishes can be a struggle, we used to skip Creed's naps to go on adventures but that is not an option with Ollie, any time he stumbles I wince and our world freezes while we wait to see if he will have a seizure, I'm constantly canceling plans because he's had a seizure and is just not up for anything but sleep. Like I've said before, it hurts to watch him struggle daily and feel like I'm doing all I can and it's just not enough. I remind myself daily that things could be so much worse and we have so much to be grateful for, but I'll admit when I'm watching him suffocate and then holding him through a seizure, it can be hard to keep that perspective.
He loves to cuddle, and he loves it when Larry comes home from work. He bullets to the door the moment he knows Larry is home.
After he came to from a seizure a few days ago, he was crying for a donut. The crying did not stop so we went straight to the store and got one. Now any time I ask him what he wants to eat, he says, "A donut!!!!" I have created a monster.