I have so much to tell you about our holidays (do you mind hearing about our December all through January, because that's how it's going to be?) but I've been so preoccupied. Here's the reason you haven't been hearing from me.
Poor Oliver has not been doing well. He's been having seizures (his fourth was yesterday) which have meant multiple trips to the ER, doctors visits, lots of tests, and lots of worry.Today was the big test that we've been waiting for, the EEG, which will hopefully shed a little light on what's going on.
I never thought I would want to see him this way, but it was a relief. We've been so worried about him and we've been feeling so helpless so this is one small thing that might lead to some help.We should have the results from our neurologist within a week. Best case senario would be that the seizures are just caused by breath-holding spells and nothing more complicated is going on. When Ollie gets hurt or upset, he lets out a loud cry and then he stops breathing. He basically suffocates until he passes out. Usually he's just out for a moment, but sometimes, he has a seizure afterwards. The breath-holding spells are scary, but the seizures are terrifying. If his seizures are just caused by breath-holding spells, there is nothing that we can do, but most kids grow out of breath holding spells around the age of two so we're hoping that the EEG doesn't show anything else going on.
We had to sleep deprive Ollie for the EEG so it was a rough day at Casa Ford that we are all looking forward to putting behind us. Poor Ollie was worn out.
The crazy part was that when Ollie was born, my friend Kristin, one of the other designer for Sycamore Street Press, was also in the same hospital with her newborn, Sullivan, so we got to hang out in the hospital together. Sullivan was also at Children's Hospital today so we lectured the boys that they have got to stop meeting this way.
Here's hoping life gets better for both of these boys!